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[QUOTE]Originally posted by LOA: [QB] Jason~ Well, I'm glad to hear that there isn't nearly as much to be concerned about with your cancer risk as you originally thought! That's a HUGE relief, I'm sure!! A couple of comments to things you've said... first, AWESOME with the sense of humor - I swear to God, it's the only way to get through crap like this in life. I'm glad to see that you're keeping it with you, even though things aren't all peaches and cream right now :) Second, about the steroids, I SOOOO understand about being bitchy and putting on weight! Sometimes, for severe migraines that won't break, we'll try me on a steroid treatment before we consider hospitalization and OMG - a week of steroids and I'll put on 10lbs, no problem at all. Plus, the last time I was on steroids, I was SUCH a bitch that my roommates literally wanted to kick me out. Honest to goodness - I lived with gay men at the time, and they could put up with ANYTHING - but they told me to pack my suitcase and go visit my boyfriend in AK or I wouldn't have a home any longer. So I bought a plane ticket and left. Then I called my Neuro and told him the steroids had to go... I couldn't risk being homeless over the situation!!! :p I do understand what you mean about being a medical oddity that your doctors don't even understand, to an extent. While our conditions and treatment plans are COMPLETELY different, it's still frustrating to feel like the ONE patient who can't be treated (I mean, come on - I have migraines for gosh sakes! Everyone knows Excedrine Migraine can fix those... the pretty lady on the commercial said so!!!) ;) One thing that has helped me a lot, and I don't know if it's an option for you, is I found a migraine support group online one night a few months ago while researching my condition. I found it COMPLETELY by accident, but I swear, it's been a lifeline - everyone there is the "odd man out" - all of us are medical enigmas who felt alone, but I swear to you, there is strength in numbers. I wonder, is there a support group of any sort for people with conditions such as yours? Mine is just a forum, much like Flare, but we discuss different treatment palns, doctors, life, and just in general offer support. It's made a night and day difference for me to feel like I'm not as alone, and other people also are going through the same trials every day as I am. It's just a thought.... I'm sorry to hear about you getting kicked in the nuts TWICE a week now instead of once.... that sucks, but hey... at least your nuts aren't in a vice, right? ;) I'm really wishing the best for ya, and if there's anything I can do to help you, or offer support, let me know. Gosh, we're a sickly bunch around Flare, aren't we? ;) ~Liz [/QB][/QUOTE]
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