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[QUOTE]Originally posted by LOA: [QB] Jason~ I'm so sorry things are going shitty for you.... Things didn't go so well for me yesterday, either. The Neuro told me that "there is no long term treatment" for my condition, my current neuro has "left no stone unturned" and I have the "most thorough file" she's ever had referred to her. She said the only REAL hopes I have are to try to get into some trials later on for a stimulator, PFO, etc, but the nearest trials are more than a year away. She's keeping me high on the list though since those are my only hopes. She also said that at this point she recommends a hospitalization for a med that is extremely dangerous in women of child bearing age to try to break the cycle - she thinks it's my only hope, and it's NOT guaranteed. Most Neuros won't let someone like me take this med, including her, but she doesn't feel there's any other option. This med can make hair fall out, cause severe birth defects in babies, and cause complications that will result in death for women who accidently get preggers after taking in. All fun. I also had an occipital nerve block injected to see if that will help at all. I won't know for several days, but since they don't believe my migraines are caused by occipital neuralgia, there's a good chance it won't help. Until it "kicks in" in a few days, I have to ice the injection point a lot - it hurts like a mother - they injected INTO the occipital nerve near the base of my skull. F*ck. I can't describe THAT to you. So I've been icing the area a lot, because even flicking my hair back hurts it. As for work, she recommends that I stop trying to fix my body so I can work, and instead fix my job to adapt to my body. Accommodations, if possible, or carreer change were her suggestions. She just kept reiterating, "there is NO long term solution - you need to enjoy the little reprives when you get them, and learn to adapt to the bad times when you don't." So I have two choices - take her word as final since she IS a world renowned expert on migraines, and then wait and see if there's any type of trial that comes up in the future that I will qualify to get into. Otherwise, I can try to see another doctor in IL - that's the next closest stop. Chicago. And risk hearing the exact same diagnosis and prognosis. It's a bit disappointing, that's for sure. But life will go on. On the plus side, she is coming to town to meet with my Neuro on Thurs to discuss some cases, so there's a CHANCE that between the two of them, they can brainstorm something together. But it's slim. I'm going to go ice my head again now.... *hugs* ~Liz [/QB][/QUOTE]
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