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I've Been In The Hospital
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[QUOTE]Originally posted by Jason Abbadon: [QB] Wow. You're the coolest- really, that's what I needed to hear. It's odd, I [i]dont[/i] like talking about it with people generally. They have sympathy but not [i]understanding[/i]. You've [i]been[/i] there in many ways. I've got a doctor's appointment tomorrow where I'll bring all this up (I dont know if he's even aware of the study yet), but as this was already a last gasp kinda treatment, I dont know if stopping will allow the disease to accelerate - It's been getting worse as I've lowered by steroid intake- they were making me angry all the time and pack on weight no matter what you eat- but I actually [i]feel[/i] better than I have in a while. The frustrating thing (and I know you understand LOA) is that the docs [i]dont[/i] understand why this is happening to me and there is no cause in my case (I've been tested for Chron's Disease and all sorts of other likely candidates). As Cedars is a teaching hospital, I've been the subject of endless student examinations and "grand-rounds"- being on display is no fun. It's my immune system that's gone all awky- it seems that my body's defenses are attacking the new cells as they form- preventing healing- then when the wound gets infected in any way, it gets worse, then the cycle starts all over. At most, it's been a holding action to slow it down. I'm, taking Methotrexate (chemotherapy with no radiation) to inhibit my immune system, and that is like getting kicked in the nuts each week (I have to do it on my day off of work- it means an additional five or six hours in bed "asleep". Oddly, it's only in that area (thank God), but every scrape or nick on my other leg is a cause for concern. How people can live with this shit on their hands or back is beyond me. [/QB][/QUOTE]
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