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[QUOTE]Originally posted by Peregrinus: [QB] Any funding is good. I think I've been approved for SSI. Okay. I thought doctors were supposed to be smart. I've been on Daptomycin for longer than I like to contemplate. Side effects I've experiences include nausea, constipation, diarrhea (at the same time!), Fatigue, muscle weaknes and pain, chest pain, heart palpitations, loss of appetite, loss of libido, and several others that I'm forgetting at the moment. Tuesday, 30 May, I had my regular weekly blood draw for labwork, and they sent the nurse back to double-check, and my counts were "critically low". Evidently I'd been sliding for some time, but they had stopped sending us copies of my results, and no one bothered to do anything until it was an acute problem. So I checked into the hospital for three and a half days, got four units of blood, a passel of antibiotics, and unending saline. Blood cultures were still showing staph, so I lost the central like I've had since October and got a new PICC in my left arm. Yay. After getting out of the hospital, I started dwindling again. I have arguably the best infectious disease doctor in the city riding herd on my case at the moment, and it was my MOM who figured out the side effects I was experiencing, and the problems with my blood, were all just effects of severe dehydration. Duh. I can't drink enough water to counter the diarrhes. Fistula, remember? Most of whatever passes my lips goes straight into my colon and is wasted. This is why I can't do any oral medications or supplements. There are tricks to maximise absorbtion, but they only go so far. So now I'm doing a half-litre of saline every day, and it seems to ALMOST be enough. I'm going to get my GI doc to up it to 750mL. But having Jen here for a week and a half was incredibly theraputic, as well as plain delightful. I love that girl. Which is, of course, part of why I disappeared for the last few weeks. *heh* That, and feeling cruddy from the antibiotics, which I have a handle on now, so I think I'm back (again). As for other things, if it's baked into brownies, I might conceivably one day resort to marijuana, but never in its raw form. The smell makes me want to find the source and kill it. A rather scary knee-jerk reaction. Percocet has been my very good friend in the past. Vicodin makes me nauseous. And I, too, avoided an allopathic approach to treating my Crohn's for most of the time I've had it. All of the meds for it are immune suppressants. No thank you. And I can't do penicillin if anything happens, being allergic to it. I mean severe anaphylaxis and die kind of allergic. So I'm very cautious about my meds. I am presently only taking three. As well as several homeopathic treatments that do not conflict (and seem to be working better than the allopathic crap). --Jonah [/QB][/QUOTE]
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