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[QUOTE]Originally posted by LOA: [QB] Next? I don't know. I really don't. That's why I've begung the charts. I'm hoping that some sort of magic trigger or pattern or something comes of it. So far, nothing, but it's only been about 3 weeks. The visual disturbances are getting worse, but I'm having a hard time researching them because I don't know what to CALL them. I'm contemplating going through a barage of serious hormone testing to see what that turns up, but that's going to be tough on my body all around - two months without birth control to start with (the birth control is the only thing regulating my hormones right now...) and then from there, according to my gyno we'd do some major hormone and glucose testing, but she said is very uncomfortable and drawn out, and not always accurate, and kind of a last ditch stop. I feel like I'm at that point though. I'm going to talk to my Neuro about it and my PCP when I see them next. My next visit to the gyno is in August, so I'd start it then if I go through with it. My only thing turning me away from it is the fact that it's not very accurate - going through hell and back for mixed results that I can't necessarily trust? Not so sure I like those odds. As far as on the Neuro front, there's still something like 45 meds left to try on their own, plus we can start combining meds... the problem is, I'm getting more and more into the fringe with every prescription. I think next we're just going to add a beta-blocker to my regimin and see what happens. I had some temporary positive results from beta-blockers in the past (Inderal/Propranolol) but I also had the bad side effect of blacking out, so I wasn't able to drive the entire time I was taking them. This is a problem for someone with a job, school, and multiple doctors appointments to get to. Before, I wasn't in school and I was on disability, plus I had my boyfriend and 2 roommates to act as my chauffer.... it was easier to not drive. Now it's a bit more difficult. But I will make it work, somehow. Also, I'm contemplating a request for another MRI, though my last one was only a year and a half ago. I know that statisticly, odds are slim that anyting has changed since then, but I don't like the fact that I keep getting more and more "unclassifiable" symptoms and I can't see what's going on with my brain. If something Very Bad is going on up there, I wanna know! So we'll see. I see my neuro again on Monday. Right now though, I'm kinda worn out on the entire thing and feeling like we're just grasping at straws. Glad to hear that your energy is coming back and you're putting on weight, though I'm sure it is tough gettingused to food again. We're all just a bunch of gimps around here, ya know that? We should rename this place... we can call it Gimps Annonymous ;-) ~Liz [/QB][/QUOTE]
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