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[QUOTE]Originally posted by LOA: [QB] "I was thinking that, rather than a sole perscription causing these visual disturbances, it might be the particular combonation of meds with your chemistry that are causing it." Could be, but honestly, I take very few pain killers... I mean, I've got the 'scripts for them, and I've got access to them, but I really very rarely take them anymore - maybe 4-5 days a month, tops, and I hardly ever take more than one dose. I just am sick of poisoning my body with painkillers, so I don't anymore - besides, they aren't effective anymore, and I didn't want to up my prescription strength, so I just stopped taking them for the most part. That doesn't mean there's no validity to what you're saying - it just means that compared to a lot of chronic pain patients, I'm awfully tough ;) "Also - the side effect sounds like LSD effects... Are you going to start "hanging around" golden gate park in a white robe? [Smile] " Don't you mean LDS? ;) It's funny you should day that, because one of the medications that I do take for extreme pain, dihydroergotomine, or DHE 45, will actually test positive as LSD if I'm given a drug test. I don't know why exactly, but that's why Elvist tested postive for LSD on his autopsy - he had DHE 45 in his system. "Another thing even though it probably does not contraindicate with any prescription medicine - do you drink/imbibe caffine or nicotine?" Absolutely no nicotine (not even second hand now that smoking is not allowed in public places in WA!) and very little caffine - Caffine can trigger migraines, theoreticly, so I avoid it. Occasionally I'll have a Pepsi or a single shot espresso when I'm in the middle of a migraine attack, but that's because when the migraine is actually happening, caffine can actually HALT it, too. Figure that out. It can cause it and it can stop it. Weird science at it's best, I tell you what....! "I've looked into places like the Mayom Clinic and Bethesda Hospital, but it's impossible to just call up, get someone that knows anything on the phone and work something out- particularly when you're already seeing a big "specialist"." Truthfully, I have no desire to go to Mayo - I've heard bad things about the Clinic from people in my migraine support group who have gone there for their headaches. However, it IS high tech and cutting edge, there's no doubt about that. Most of the negativity that I've heard deals with the way they prescribe medications (or actually don't), but since I don't WANT more meds, I guess that's not really a problem for me.... Dr. Wurst has sent patients there before, so he has a working relationship with the clinic, I guess. His office would make the arrangements for my appointment and getting my charts down there and all of that. I just don't want to get to that point. I'm hoping we can figure something out locally. I'd really just rather deal with stuff in-house than pay all that money to travel down there..... ~Liz [/QB][/QUOTE]
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