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[QUOTE]Originally posted by LOA: [QB] Thanks for asking, though I hesitate to post on my current condition for fear of angering the Health and Wellness Gnomes... In August, I went two weeks straight with excrutiating head pain (read: I would have given anything for a gun to put to my head on several occasions) and so my doctor put me out of work on Short Term Disability. Again. In this timeframe, there was a major revamp of my medication - we kept me on everything I was already on and added propranolol, which is a beta-blocker. I've had luck with propranolol before, but I had to stop taking it because it lowered my blood pressure so much that I was passing out. This time, I'm on a lower dose, but we're still hoping for headache control. Also, we talked about another hospital stay. I declined due to cost, comfort, and the fact that as soon as I LEAVE the hospital, the pain already returns. Instead of hospital time, my doctor allowed me to start taking the hospital medications at home. So my boyfriend learned how to give me injections of DHE in my keester to help break the spell. The DHE helped, but still wasn't enough to break this acute and extreme attack. Desperate to break it, my doctor also put me on a steroid burst and a burst of Midrin, which is a combo drug, including a vaso constrictor. All of these meds, in combination with my OTHER daily meds, finally broke the attack, and I was able to return to work last week. In the midst of all of this though, all hell began to break loose at the pharmacy. My pharmaceutical company decided that I can no longer get retail fills on my medications. Don't ask, I don't want to talk about it. This is an issue that I'm still fighting. They're forcing me to get a 90 day supply of everything through mail-order now though - this is great for meds that I take for 90 days at a time, or for meds that I know I will need in advance. The problem is, I don't take ANYTHING for a full 3 months, and there are a LOT of meds that I only get prescribed in the middle of an acute attack. I can't just wait 7-10 days for those to be delivered when I'm in excrutiating pain. So it's an issue. Anyway, enough bitching about the pharmacy. Since we broke this last spell and got me up to my dose on propranolol, I've been doing much better. I've gone from daily pain of an 8 or higher on the pain scale to pain topping at a 4 for over a week. This is a borderline miracle. All without ANY pain medications in the last week. As I said, I hate to talk about how well I'm feeling, for fear of jinxing it, but truly, this is the best I've felt in.... well, I don't know how long. I'm not well, I'm not cured, but for the first time in months, I almost feel like a human. I saw my Neuro on Monday and he put me back on one of my anti-epileptics, hoping it will help even more, and he's given me an abortive to try. It's a triptan, so if it works, it could be life changing. None of the other triptans have worked so far though, so I'm not holding my breath on that one... Anyway, that's the update. I may be getting close to finding my "drug coctail", or this well time may be a fluke. Either way, I'm going to enjoy it while I can. I hope you start to find your magical medical miracle soon, too.... ~Liz [/QB][/QUOTE]
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