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[QUOTE]Originally posted by LOA: [QB] Alive. Haven't been allowed to work since before President's day, so that's killing me. I'm allowed to drive again though, so that helps. It's a little less like being under house arrest, though not much since I very rarely venture out in daylight hours. I've lost more than 20lbs now. No one knows why, specifically, but my PCP and my Neuro are both not too concerned about it, so I'm not going to worry about it anymore, either. Shit, I'm a 25 year old girl in the US.... skinnier is better, right? The double vision has mostly gone away and seems to be a side effect of not sleeping coupled with computer use. If I spread my computer use out and get at least 4 hours of sleep a night, it is managable. If I get less than 4 hours, it's still managable, as long as I limit my computer use by a LOT. The passing out is over... I've only had a few recent spell brought on by the Zanaflex when I take it. For some reason, since I've taken the MAOI, the Zanaflex reacts poorly in my body and lowers my blood pressure to the point that it causes passing out. This is bad, as I've taken Zanaflex for years with no problems. The MAOI has been "out of my system" for a month now, but somehow I believe it's still screwing with my body and the neuro transmitters in my brain.... Since I took it, there's not a single medication from "pre-MAOI" days that I can take without reprecussions... DHE gives me severe body cramps, Percs make me sick, antiemetics are ineffective, Zanaflex lowers my blood pressure dangerously.... I've suddenly become intolerant to my entire "aresenal" of medicaion, and we've tried other meds, as well, and only gotten horrid side effects as a result. Therefore, this is the migraine cycle that can't be broken. Right now I'm not taking any meds, except one "preventative." We kept me on this one because it keeps my sound sensitivity in check. It's the only med the MAOI didn't mess with, but I believe that to be because I took it WITH the MAOI. It's pretty strange the way everything else just keeps messing me up worse. I've finally told my doc that I can't handle the cure 'cause it's worse than the ailment right now with the way my body keeps rejecting stuff..... it's just strange. I see the new specialist in Seattle in two weeks. hopefully she'll have some ideas, but it's hard to say. I believe this MAOI thing might have been a Very Bad Idea, but we had no way of knowing that going into it. I also see a new sleep specialist in 3 weeks. :rolleyes: I have little faith in that specialty, but we DO know that sleep issues are my top migraine trigger. Unfortunately, I'd gotten back to 4 hours of sleep a night, then we screwed it up by giving me my sleeping aid back in order to try to bump it to 8. My body reacted to the sleeping aid, even though it's a pill I've taken off and on for years, and since then I've been lucky to pull 1.5-2 hours of sleep a night, and what sleep I DO get is not solid. Desperate times call for desperate measures, I guess, but sleep specialists are unique in that they have a specialty where they can 100% tell the patient that it is his/her fault when the "cure" doesn't work. "You don't have good enough sleep hygiene! That's why you don't sleep well! You must follow these 5000 rules too the 'T' and if you do, you will sleep. If you don't, you will not sleep, and it's your fault!" Then, they make it so complicated to sleep that no one CAN follow all of the rules, and when it doesn't work, it's because the patient was "uncooperative." Can you tell that I'm pretty jaded about sleep specialists? My Neuro swears this one is different than the others I've seen, but I doubt it. Anyway, that's my update. Things are fine, I'm just in limbo, waiting for them to get better. Hope everyone else is doing well.... ~Liz [/QB][/QUOTE]
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