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[QUOTE]Originally posted by LOA: [QB] Things are relatively stable here in my neck of the woods... When I got the Narcolepsy/Hypersomnia diagnosis in May, the doctor put me on a low dose of stimulants (ADHD meds, actually) as an attempt to wake me up. It didn't do a damn thing, in in the long run, so rather than piss around with it, he evaluated my chart history, saw that my body metabolizes medications in an UNREAL fashion and just decided to "pump it up" a bit by doubling my dose - to the highest dose approved by the FDA. I've been taking that since early June, with no effect on my quality of wakefulness or sleep. Further, I'm just as exhausted now as I ever was. However, an unexpected thing DID come of it - My migraines suddenly got a lot better. Go figure. It seems that a high dose of stimulants coupled with a high dose of my current anti-epileptic (and the other preventatives I take standard) are the winning combo we've been waiting for. Whereas I usually have to up the dose of the anti-epileptic every 3-7 days to maintain any type of relief, since increasing my stimulant dose, I haven't had to touch the anti-epileptic at all. It's like I'm on a teeter-totter, and for the moment, it's all perfectly balanced. This has presented quite the dilemma, in that while we were hoping that the stimulant WOULD help my migraines, we were hoping that it would help my sleep issues as well - killing two birds with one stone, so to speak. Now, I'm somewhat stuck, as I have the best migraine control I've ever had and I've backed myself into a corned with NO possible way to try and resolve my sleep issues because I'm topped out on the stimulants already. Complicating matters even more is the fact that my sleep doctor, who prescribed the stimulants, knows NOTHING about migraines like mine. My Neuro doesn't prescribe stimulants at ALL for migraines (it's a pretty "far out there" treatment that very few Neuros will use). So I'm sort of playing "go between" as the gineua pig in this little debacle. For now, it's sort of been determined that the migraines are the greater of the two evils, until something happens to prove otherwise, and I am going to keep taking this combo to control that condition and let the sleep issue to do its thing. If the sleep issues cause further problems (and they could) or the meds stop working for migraine control (which my history states they likely will) then we'll start to fuck with shit again. But for now, we're just going to sit back and watch with the attitude of "if it ain't broke, don't fix it." Now, this isn't to say that I don't have migraines anymore - still have them daily. But they are better than they have been by a lot. Further, the BAD ones now have identifiable triggers - that's never happened before. Every major migraine attack I've had since I started the increased stimulant dose has been because of a change in weather. Mainly thunder storms. I've NEVER been able to ID a trigger for a major attack before. Ever. So this is progress, whether short-lived or not. My Neuro told me to just enjoy it while I can... Side note: I'm not able to treat my major attacks as well anymore - my Percocet script is gone, replaced by Vicodin due to a recently developed allergy to oxycodone (drat!!!!). Vicodin, BTW, works about as well as - well - Tylenol. Seeing that the Percs almost weren't cutting it anymore. But on the plus side, at least I can take solace in the fact that the major headaches are fewer, father apart, and I know WHY the headache they have come - and the worst of it seems to roll out with the storm front... I'll take this reprieve while it lasts, for sure. :p That's my update. I hope I didn't jinx myself *knock on wood* ~LOA [/QB][/QUOTE]
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