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Well, there goes my chance to bemoan my pains and troubles.
Fuck Jay....dont give up! I know how corny that shit sounds, but spontaneous remissions happen every day- some lasting years.
I ran into an old friend of mine a few days back and he commented about "how political" I've become (I guess I was ranting on about Bushco's flaunting power or something) and I blame you. You pointed out a lot of crazyness that I'd have missed otherwise....and probably made all my friends roll their eyes a thousand times as I went off about this or that. Stick around- I need more info to rant about....and the elections are still more than a year away! You could miss the Clinton/Gulianni split-ticket.
Liz, your condition sounds a lot like the diagnosis given to Mr. Burns, explaining how all the illness are at a state of perfect balance....to which he replied "So what you're saying is, I'm Invincible."
Now that I think of it Jay, your situation sounds a lot like when Quark thought he was going to die (on DS9). Been auctioning your remains online? I'm betting CHarles is the buyer...
Registered: Aug 2002
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Still waiting for a date for Kate's op. Supposed to be sometime in September. I presume it'll be worth the wait, since in recently published league tables of cardiac surgeons, her guy has a 100% success rate as opposed to the average of 98.something% (cue someone at work saying to her "Well, maybe you'll be his 1%" and no, I'm not making that up). She gets tired all the time now, and has wildly different BPs in her arms. I'm beginning to worry, a bit.
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I'm sorry to hear about your tumor Jay. Don't give up. Where there's a will, there's a way. Can't you seek a second opinion?
Registered: Feb 2005
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Lee, sounds like you've got the best man for the job. Surgically speaking, a month away is not long at all, particularly if you've got a real specialist. When I had that graft put on my leg, they had scheduled the entire week's worth of surgery suite time (they had me come in two hours prior to my surgery time jsut in case someone had finished early). Good luck to you (and yours) on the operation.
Jay, I'm hoping things have improved for you (obviously). That second opinion is probably a good idea (though I'd imagine you've seen a ton of doctors by now).
-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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OK This is probably no help at all but when I was reading this e-mail I thought of Jay...
quote: Dr Charlie Teo is a paediatric neurosurgeon and founding director of the Centre for Minimally Invasive Neurosurgery at the Prince of Wales hospital in Sydney. In addition, Charlie is the founder of the Cure for Life Foundation, a charity organisation devoted to the advancement and treatment of patients with brain tumours. Charlie has courted prominence and controversy through his use of keyhole neurosurgical techniques to remove so called inoperable brain tumours. He has recently been featured on 60 minutes, Australian Story and RPA. Date: Friday 31st August 2007 Time: 6:30pm to 9:00pm To be followed by complimentary supper Venue: UQ Centre, University of Queensland St. Lucia THIS IS A FREE PUBLIC LECTURE NO RSVP IS REQUIRED FOR MORE DETAILS VISIT UQMS.ORG
-------------------- "Bears. Beets. Battlestar Galactica." - Jim Halpert. (The Office)
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Jay, I'm very sorry to hear about the persistence of your big C. It really is not fair. I don't know whether it's any consolation, but I wanted to let you know that you have influenced a lot of us here at Flare. I know that I have linked directly to posts you've made here precisely because they were so well written and thought-out (not to mention conscise). On either side of any argument, you've really raised the bar for discussion: demanding facts, citation, and reason. Here's one more vote for remission.
Registered: Sep 2000
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Jay, I went to the public lecture. An AMAZING lecture - one of the best I've ever been to.
If you can please look up Dr. Charlie Teo. He is based in Australia but he has been undertaking a project to have poorer countries learn his techniques. Subsequently Peru is at the top of their game. His 'controversial technique' is nothing more than using keyhole surgery to eliminate tumours in the brain. He said he often has patients that have been operated on several times before.
He also said he interns from the US studying under him. There seems to be an 'old-boys club' backlash against him in this country. He doesn't beat around the bush with what he has to say - and somewhere through his career he seems to have pissed off the wrong person. Anyway - it just all sounds like politics. His results speak for themselves.
We watched a video of him removing a tumour using his technique. Amazing stuff.
Jason, reguarding lectures - I've been privaliged in the last few weeks to see two quite amazing lectures. The other lecture I went to was about a researcher who is already up to clinical trials using antisense technology to inhibit the action of connexins (little channels between cells) allowing rapid wound healing in a localised area. Stops the body's natural "wild" tendency to pump a whole lot of it's immune 'fighting' system to the area and allows the area to regenerate and heal better with less scarring etc. He showed the amazing results of a building labourer who had essentially destroyed his left eye through chemical burns. He was allowed to give his new therapy a go cause the guy was pretty much going to have to have his eye put in the bin. Anyway - this man's techniques saved the builder eye and he is seeing out of it with no problems now. Was an amazing lecture.
Of course with both of these therapies and lectures you can't guarantee anything but both showed cases of people with no other option being made healthy!
The name of the connexin guy is:
Professor of Developmental and/or Regenerative Biology, Associate Professor David Becker Reader in Cellular Imaging Department of Anatomy & Developmental Biology University College, London
Seminar Title: Gap Junctions - a New Target in Tissue Repair
His product they are producing is called Nexagon Coda Therapeutics.
I sincerely hope that this information can help both of you!
Andrew
-------------------- "Bears. Beets. Battlestar Galactica." - Jim Halpert. (The Office)
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I'll try and type out all my notes that i took at the lecture. I'm sure you could even search on the researcher's name and see what he has to say!?!
-------------------- "Bears. Beets. Battlestar Galactica." - Jim Halpert. (The Office)
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Well, some good news! My leg growing some skin- the nurses are all aflutter, but I'm reserving judgment for a measurable reduction in size. Still....it's something.
No idea why this "rapid" progress is happening now...possibly a result of sleeping with my legs elevated (which leaves me tired) or maybe even a circulation thing from walking so much (as I still have not replaced my dead car).
Whatever it is, I'm happy something is improving: I was getting pretty nihilistic there for a few weeks.
Jay, you still with us man? Hope so...I wanna buy everyone from this thread a few drinks at some Flarite get-together sometime.
-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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Kate's op was yesterday morning. Seems to have gone OK, a little bit of bleeding they were concerned about but since she's already been moved out of the ICU after only a day, I guess that's now stopped.
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