posted
Doom and gloom all round, then. My wife gets a call from her cardiac consultant, in reply to her chase over the still-unscheduled stress-exercise test. Turns out he's seen her last MRI, and on the basis of that is going to bring up her case at the next surgeon's meeting, next week. So it looks like she will need surgery, so our hopes that the test would rule it out are unfounded.
Cartman
just made by the Presbyterian Church
Member # 256
posted
...
LOA, I don't know how you manage to feel anywhere near "well" with that little sleep (if I average less than 6 for a few days I'm as good as dead, which is every other week on my schedule), nevermind all the other crap thrown at you, but I sure would like to know your secret. B)
-------------------- ".mirrorS arE morE fuN thaN televisioN" - TEH PNIK FLAMIGNO
Registered: Nov 1999
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quote:Originally posted by Lee: Doom and gloom all round, then. My wife gets a call from her cardiac consultant, in reply to her chase over the still-unscheduled stress-exercise test. Turns out he's seen her last MRI, and on the basis of that is going to bring up her case at the next surgeon's meeting, next week. So it looks like she will need surgery, so our hopes that the test would rule it out are unfounded.
Well that's super crappy. on a plus note, I was just reading that there are more cardiac treatments than any other kind (probably due to the commonness of cardiac disease in this country). So- hopefully this will be a "common" malady that easily treated- heck, even stuff like angioplasty (once a last-ditch effort) is now a smooth process.
LOA, you need to seriously consider weither the new batch of side effects is worth whatever pain-free moments you might get from the current treatment. Really does not sound like it- if I coud not read, I'd go nuts (moreso even than already).
-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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Charles Capps
We appreciate your concern. It is noted and stupid.
Member # 9
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Jeez Liz, from the way you talk, it's like you're in an abusive relationship with your friggin' meds...
Registered: Mar 1999
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It's not worth it, and we're pulling me off of everything, one at a time, as quick as possible. WE can't do everything at once, because then we won't know which med was the culprit, and I may take a similar drug again by mistake some day, thus having the same issues. I've already gone off of my sleep aid, since it seemed most likely at first (thus the lack of sleep).
Now I'm going off of the MAOI. Tonight is my last pill, then it will still be 2 weeks before it's completely out of my system.
After that, if things haven't settled down, I don't know which med we'll go after. All of the other ones I've been on VERY long term, and these problems are recent.
Charles~
It's funny that you say that, because after I passed out on Friday night last week and had to go to the ER, my mother showed up (a 14 of her personalities) and she caused a huge scene accusing me of being a "battered woman" and saying that I'm just making all of this up because Scott beat me and I didn't want anyone to know... puh-lease.
First of all, if any guy laid a hand on me, that would be the end of THAT. I'd be gone, and I'd take him down the legal system as far as I could in no time flat.
Second of all, if I WAS a "battered woman," and for some FUCKED up reason I decided to stick around, WHY wouldn't I just say I fell instead of making up a HUGE lie that includes me having all of my medications taken away from me and having to see all of these extra specialists and have extra tests done?
And third, if Scott HAD beat me, he probably wouldn't have let me come to the ER alone while he went snowmobiling... I'm quite sute he would have wanted to be there to make sure I "didn't say anything" about it, or whatever.
My mom is a moron.
THEN, after I had to listen to this crap for 10 solid minutes, and I'm trying to reason with her and convince her that I WASN'T beaten ("Battered women lie about this, so you're going to have to prove it to me... just saying it isn't good enough!" - what????), suddenly her next personality came out, and she asked if Scott wanted to go out to breakfast with her and meet her mom and sister next weekend.
Hello? Psycho? You just accused the man of beating me and said you were going to kill him less than 30 seconds ago. Now you want to take him to breakfast and introduce him to the family???
Then it got even stranger when about 2 minutes after that, out of nowhere, she asked if I thought I'd finally get my engagement ring for V-day this year, because she loves Scott so much, and she's just ready to make him part of the family.
SAY WHAT???
The woman needs help.
So yes, it does seem that I'm being beaten. In this case, I believe it was by the bathroom counter when I passed out. My mom thought it was Scott. But as you pointed out, it's really just my meds
Registered: Mar 1999
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It's not worth it, and we're pulling me off of everything, one at a time, as quick as possible. After that, if things haven't settled down, I don't know which med we'll go after. All of the other ones I've been on VERY long term, and these problems are recent.
Geez....not to scare you or anything, but have you asked your doctor if the constant switching of meds in new combonations has led to these blackouts? It might not be the meds so much as your body tiring of the costant chemical shake-up. It's got to be rough on you- emotionally as well as physically.
quote: THEN, after I had to listen to this crap for 10 solid minutes, and I'm trying to reason with her and convince her that I WASN'T beaten ("Battered women lie about this, so you're going to have to prove it to me... just saying it isn't good enough!" - what????), suddenly her next personality came out, and she asked if Scott wanted to go out to breakfast with her and meet her mom and sister next weekend.
Maybe she just wants someone to beat up her mom and sister?
I've given up trying to explain anything medical to my mom- she operates solely on a "who/what is to blame" basis. Now I just say I'm not doing too bad", which is the same bullshit answer my grandmother gives everyone when asked how she's feeling.
-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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posted
I normally wouldn't have even told her about what was going on, but I needed a ride to the ER - I was hoping I could count on her for that.
She had breakfast plans though.
So I drove myself, and got a lecture from the ER about how I shouldn't have driven myself, blah, blah, blah. Whatever.
Anyway, my mom is crazy. I pretty much try to keep her on a "need to know" basis as much as possible. It's just not worth the effort of giving her any more than that.
I'm happy to report, BTW, that aside from the double vision, a lot of the other crazy side effects I've been dealing with are finally going away. My doctor told me the shocks and dilation of the eyes and such was all because of the rate at which we pulled me off of the MAOI - we went as fast as possible, and my body reacted with some withdrawl symptoms. I feel much better knowing that. The double vision may well be the same thing, but we will not know for another little while - the medication won't be completely out of my system for another 2 weeks, even though I've stopped using it now.
Registered: Mar 1999
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posted
Just rememer, when driving with double-vision, aim for the space between the two oncoming cars.
It's good to hear your symptoms may be going away. As for myself, I freaked out last night when I changed my dressings- it looked like the eedge of the would on one side was...er...liquefing (breaking down from beneath the skin's surface), so I called out of work and went to the wound-care center tha's treating me. Thankfully, it seems the weird look of the wound's edge is the result of the two knee-high compression bandages I wear now and not some horrific backsliding.
Next week (monday) I'm having something called Apligraf ...er...grafted is too severe a term, (applied a bit too weak) to the wound (the procedure takes a couple of hours to perform but requires no hospital stay). It's artificial skin grown in a lab and designed to adapt to a wound's surface regardless of blood type.
I'm crossing my fingers that it works like the Doc says- could be the magic cure I'd given up on.
-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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posted
after 2/12 weeks out of thehospital yesterday's mri shows that the tumor is already back
[ February 28, 2007, 07:09 PM: Message edited by: Jay the Obscure ]
-------------------- Great is the guilt of an unnecessary war. ~ohn Adams
Once again the Bush Administration is worse than I had imagined, even though I thought I had already taken account of the fact that the Bush administration is invariably worse than I can imagine. ~Brad DeLong
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Registered: Mar 1999
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quote:I'm also having these bizzare electric shock feelings that go through my body - seriously, it feels JUST like how it felt when I WAS electrically shocked in high school. They just pass through my whole body in a quick single wave, and I convulse, and anything on my lap is bucked off (my laptop once) and anything I'm holding is literally thrown to the floor in the process. Totally weird.
Wasn't there a House episode...?
-------------------- "This is why you people think I'm so unknowable. You don't listen!" - God, "God, the Devil and Bob"
Registered: Mar 1999
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Da_bang80
A few sectors short of an Empire
Member # 528
posted
I had an experience similar to that back in the fourth grade when I had a four month long stint of bronchitis. It felt like thousands of needles were poking me on waves up and down my arms. It was really scary.
Oh, and 23 days until my dental surgery. I can't hardly wait...
-------------------- Grant me the serenity to accept the things I cannot change. The courage to change the things I cannot accept. And the wisdom to hide the bodies of all the people I had to kill today because they pissed me off.
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