posted
Geeez Jay...that's fucking awful. How can it (or any tissue) be back so quickly?
Hmmmm....on a morbidly positive note, surgical re-entry should go smoother this time as you've not had chance to properly heal. I'm reminded of the scientist guy in Nightmare Before Christmas- the one with the fliptop head.
Hang in there man- we aint naming any starships after you just yet!
-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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-------------------- I have plenty of experience in biology. I bought a Tamagotchi in 1998... And... it's still alive.
Registered: Apr 2005
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posted
So...everyone still kibking? I've been doing the 'ol "familial responsibility" thing while on vacation, but I'm finally back.
Hopefully things are well with our little circle of sick friends.
-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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Da_bang80
A few sectors short of an Empire
Member # 528
posted
I ran out of drugs today... It feels like someones trying to forcefully replace the wisdom teeth they took out
Other than that, yeah, I'm good.
-------------------- Grant me the serenity to accept the things I cannot change. The courage to change the things I cannot accept. And the wisdom to hide the bodies of all the people I had to kill today because they pissed me off.
Haven't been allowed to work since before President's day, so that's killing me.
I'm allowed to drive again though, so that helps. It's a little less like being under house arrest, though not much since I very rarely venture out in daylight hours.
I've lost more than 20lbs now. No one knows why, specifically, but my PCP and my Neuro are both not too concerned about it, so I'm not going to worry about it anymore, either. Shit, I'm a 25 year old girl in the US.... skinnier is better, right?
The double vision has mostly gone away and seems to be a side effect of not sleeping coupled with computer use. If I spread my computer use out and get at least 4 hours of sleep a night, it is managable. If I get less than 4 hours, it's still managable, as long as I limit my computer use by a LOT.
The passing out is over... I've only had a few recent spell brought on by the Zanaflex when I take it. For some reason, since I've taken the MAOI, the Zanaflex reacts poorly in my body and lowers my blood pressure to the point that it causes passing out. This is bad, as I've taken Zanaflex for years with no problems.
The MAOI has been "out of my system" for a month now, but somehow I believe it's still screwing with my body and the neuro transmitters in my brain....
Since I took it, there's not a single medication from "pre-MAOI" days that I can take without reprecussions... DHE gives me severe body cramps, Percs make me sick, antiemetics are ineffective, Zanaflex lowers my blood pressure dangerously.... I've suddenly become intolerant to my entire "aresenal" of medicaion, and we've tried other meds, as well, and only gotten horrid side effects as a result.
Therefore, this is the migraine cycle that can't be broken.
Right now I'm not taking any meds, except one "preventative." We kept me on this one because it keeps my sound sensitivity in check. It's the only med the MAOI didn't mess with, but I believe that to be because I took it WITH the MAOI.
It's pretty strange the way everything else just keeps messing me up worse. I've finally told my doc that I can't handle the cure 'cause it's worse than the ailment right now with the way my body keeps rejecting stuff..... it's just strange.
I see the new specialist in Seattle in two weeks. hopefully she'll have some ideas, but it's hard to say. I believe this MAOI thing might have been a Very Bad Idea, but we had no way of knowing that going into it.
I also see a new sleep specialist in 3 weeks. I have little faith in that specialty, but we DO know that sleep issues are my top migraine trigger. Unfortunately, I'd gotten back to 4 hours of sleep a night, then we screwed it up by giving me my sleeping aid back in order to try to bump it to 8. My body reacted to the sleeping aid, even though it's a pill I've taken off and on for years, and since then I've been lucky to pull 1.5-2 hours of sleep a night, and what sleep I DO get is not solid. Desperate times call for desperate measures, I guess, but sleep specialists are unique in that they have a specialty where they can 100% tell the patient that it is his/her fault when the "cure" doesn't work. "You don't have good enough sleep hygiene! That's why you don't sleep well! You must follow these 5000 rules too the 'T' and if you do, you will sleep. If you don't, you will not sleep, and it's your fault!" Then, they make it so complicated to sleep that no one CAN follow all of the rules, and when it doesn't work, it's because the patient was "uncooperative."
Can you tell that I'm pretty jaded about sleep specialists? My Neuro swears this one is different than the others I've seen, but I doubt it.
Anyway, that's my update. Things are fine, I'm just in limbo, waiting for them to get better.
posted
Presently 193 lbs., and fairly stable. I expect that to drop a bit as I finish weaning off the prednisone. 4.5mg/day now, and still dropping weekly. I should have pictures to post soon.
Also driving again. I hadn't realized just how much of my depression was connected to that. Oy.
Hey, Liz -- when you're out here, you want to meet up for coffee or lunch or whatever form of sustenance you can still partake of?
--Jonah
-------------------- "That's what I like about these high school girls, I keep getting older, they stay the same age."
--David "Woody" Wooderson, Dazed and Confused
Registered: Feb 2001
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Da_bang80
A few sectors short of an Empire
Member # 528
posted
quote:Originally posted by Peregrinus: Also driving again. I hadn't realized just how much of my depression was connected to that. Oy.
Man, I know what you mean. Winter is always hell for me because I have to put my bike away for 8 months. At least all the snows melted off the roads by now, I just have to wait for the city to sweep off all the dirt and sand now.
-------------------- Grant me the serenity to accept the things I cannot change. The courage to change the things I cannot accept. And the wisdom to hide the bodies of all the people I had to kill today because they pissed me off.
posted
Charles hit me up for food, as well... I'm not sure if I'll be able to, yet.
I'm only in town for a few hours, literally, and I have a friend who is picking me up from the airport, taking me to my appointment (which is supposed to take 2-4 hours??) and then "has plans for us" for the rest of the day for I haven't been able to find out from her what those plans ARE....
As I was telling Charles, she's a bit wild and crazy, so I need to see what is happening... I'd like to find time to meet up with you peeps though. BUT, since she's pretty much saving my hide by driving my ass around all day (she got a babysitter and TOLD me "you're not getting a rental car, when does your plane come in, I'll get a babysitter, and we're GOING to get your brain figured out together!") I don't really think it would be appropriate to just abandon whatever wacky plans she's made for me already
Though, if my appointment really takes 4 hours, there won't be much time for wacky plans, anyway.... not with airport check-in times and all.....
As I said, I'm REALLY only in Seattle for a few hours total... I think I come in at like 11:00am and I leave at like 7:00pm or something. Appointment is at 1:00pm, I believe. Plus drive time from SeaTac to Swedish and back... oy!
-------------------- "You are anal twattypoo who has ruined my good mood" PsyLiam to TSN May 01,2006.
Registered: Mar 1999
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posted
I could meet you at Swedish to wish you luck, maybe have lunch right before or right after (if your appetite is up to it), say hi to your friend, and then let her abduct you once more.
Basically, I want to give you the hug and mojo I've been saving up for you for so long. *heh*
--Jonah
-------------------- "That's what I like about these high school girls, I keep getting older, they stay the same age."
--David "Woody" Wooderson, Dazed and Confused
Registered: Feb 2001
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quote:I'm only in town for a few hours, literally, and I have a friend who is picking me up from the airport, taking me to my appointment (which is supposed to take 2-4 hours??) and then "has plans for us" for the rest of the day for I haven't been able to find out from her what those plans ARE....
Sounds like the setup for a bad Lifetime TV movie.
As to Percs- remember to eat something sugary with them- they'll react faster and you'll skip the "razors in the stomach" routine.
I had a slight ...legal difficulty.. and almost got arrested- resulting in my not having a car for almost three weeks...until today! Amazing how we all have that odd transportation issue at the same time.
-------------------- Justice inclines her scales so that wisdom comes at the price of suffering. -Aeschylus, Agamemnon
Registered: Aug 2002
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![[Frown]](frown.gif)
![[Roll Eyes]](rolleyes.gif)
I have little faith in that specialty, but we DO know that sleep issues are my top migraine trigger. Unfortunately, I'd gotten back to 4 hours of sleep a night, then we screwed it up by giving me my sleeping aid back in order to try to bump it to 8. My body reacted to the sleeping aid, even though it's a pill I've taken off and on for years, and since then I've been lucky to pull 1.5-2 hours of sleep a night, and what sleep I DO get is not solid. Desperate times call for desperate measures, I guess, but sleep specialists are unique in that they have a specialty where they can 100% tell the patient that it is his/her fault when the "cure" doesn't work. "You don't have good enough sleep hygiene! That's why you don't sleep well! You must follow these 5000 rules too the 'T' and if you do, you will sleep. If you don't, you will not sleep, and it's your fault!" Then, they make it so complicated to sleep that no one CAN follow all of the rules, and when it doesn't work, it's because the patient was "uncooperative."![[Wink]](wink.gif)
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